If you’ve been following the site for any length of time, you know that I have a daughter with a life-threatening illness. You might also recall that I’ve already lost a daughter to a *different* terminal illness.
What you might not know is the past few months, my living daughter’s health has been going wibbly-wobbly on me. Her tests are coming back fine (well, not *fine*, but not changed from her previous assessments), and so the doctors are codswalloped. We’re continuing to test.
It’s really, really hard for me to continue like everything is all fine and dandy when in the space of week I’ve had to discuss getting my child a wheelchair and putting her back on supplemental o2.
Actually, it’s not just a discussion. We pick up L’s temporary (we’ll re-evaluate in six months) wheelchair on Friday.
The wheelchair isn’t a ‘she’s going to be in this every day’ thing. It’s for use on her bad days, long trips, shopping trips, etc. So I really shouldn’t feel as conflicted as I am, because lots of people have kids in wheelchairs that are permanently in them, but …. It feels like I’m making a concession for her issues that I’ve never had to make before. Before she was small enough for a stroller, or to ride on my back. She’s gotten too big for that to be an option now. So the wheelchair makes sense right now, logically, but that doesn’t make me any happier about it.
I am not in my happy spot.
So, I’m not going to take any more review books for a while. I’ll still continue to review stuff that I pick up and movies because they don’t require as much time, I’m just not accepting any more book submissions for a bit.
Gracie will continue to accept submissions.
I personally will accept submissions again soon-ish. I will continue to try to plow through the books that everyone has submitted. Yes, there may be a delay, and I’m sorry for that, but I guarantee if you walked a mile in my shoes right now you’d probably be shocked I was still continuing to read at the rate that I am.
We may occasionally drop down to only one post a day sometimes, but we will continue to give you fresh content every day.
Just… my kid, y’all. My Monster. I’ve been through this hell once. And I’m scared boneless that I’m gonna have to do it again.
I hope you guys and gals never know how freaking horrible this is.
Lighter note: Anyone know how i can get my hands on a customized but removable tag for her wheelchair to make it fun for her?
We’ve decided it’s going to be called “The Monster Mobile”.