As you can see, there’s been lots of ups and downs health-wise, but always almost an excess of personality. (The one in the frog hat is the most current.)
Last night she had me in tears. There is something inherently powerful about hearing your child – who you honestly never expected to live to see 7 because of her life-threatening (technically terminal) illness – belting out Katy Perry’s “Roar” at the top of her lungs while taking her breathing treatment -on the eve of her 7th birthday.(We encourage karoake during breathing treatment under the assumption that she has to take deeper breaths in between words.)
I had to stare at my kindle because tears were in my eyes, and all I could think was “I hear you roar, baby. I hear you roar.”
So, happy birthday to my now-not-so-little Monster!
Side Note: Text from my partner this morning.
She jumped awake and the first thing she said was, “I’m seven! Yessssss!!” Then she started fist pumping, only to stand up and immediately get sad ’cause she didn’t look any different.